Journal on Medical Genetics - BJSTR Journal

 

Abstract

#Pediatric palliative care is still a young, but rapidly growing field world wide. There have been a number of children’s hospitals creating palliative care services over the past two decades. Both the American Academy of Pediatrics and Institute of Medicine have focused attention on increasing the care access for children with life-threatening or life-limiting medical conditions. Data has shown the beneficial effects of inpatient palliative care services, not only on assisting control of #physical symptoms like pain but also to ameliorate the suffering and maintain dignity that is appropriate for the culture, religion and upbringing of the family. The service has shown to improve patient satisfaction and decrease the length of stay. Various studies have projected newly formed pediatric palliative care teams initial struggles, periods of quiescence with variable levels of growth and success over subsequent years. All primary and repeat referrals to pediatric palliative care were recorded over the first year after the service was created. Direct interventions with staff included division meetings with #pediatricpulmonology, NICU and PICU to discuss the role of palliative care. Huddles were done with the nursing staff from NICU, PICU, Pediatric Oncology and the Pediatric floor and meetings were conducted with the social workers covering these units. Other interventions included grand rounds, website creation, and lectures on palliative care to medical students.

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Interventions to Increase Referrals to a New Pediatric Palliative Care Service: A QI project by Ratna Basak in BJSTR